Ten Years of Expression of Hope

Stories can be told, but artistic expressions are meant to be felt. For 10 years more than 450 pieces of art have been shared through the Expression of Hope program to raise awareness of the feelings, fears, and hope of the global LSD community. Each one is a personal expression, and each one tells its own unique story.

In honor of Expression of Hope’s 10th anniversary, we have created a commemorative eBook and a series of videos sharing a selection of these stories.

“A work of art is enduring through its ability to evoke emotion and, often times, to inspire. To all of those who have been touched by a lysosomal storage disorder, you inspire us and the entire world through your perseverance, candor, courage and hope for the future. It is a privilege to be a part of this community. We dedicate this collection, and our own personal journeys of discovery, to you.”

— Richard Peters, MD, PhD, Head of Global Rare Diseases

 
 

Patient Experience

Meet the artists behind four of the Expression of Hope III Featured Artwork pieces. Learn about how their art has shaped their experiences of being affected by lysosomal storage disorders.

  • Matt Sheldon, The Colours of the Penguins

    Matt created The Colours of the Penguins to convey his admiration of his young cousin who is affected by Niemann-Pick Type C. Matt shares what the support of family means for someone living with an LSD.

  • Charlotte & Rachel Matthews, Walking in Sunshine

    Though Charlotte is affected by Fabry, she finds strength in her art. Her mother, Rachel, tells us how her daughter is able to look for sunshine and dance, even in the rain.

  • Frank Rodriguez, First Day at School

    Photography has always helped Frank, who lives with Pompe disease, experience the world and share his journey of fatherhood. Now his photos feature the most beautiful subject of all, his young daughter Eva, as she begins her own personal journey.

  • Eefje, It’s There But You Don’t See It

    Eefje and her mother Annelies both have Fabry disease. Despite the pain she often endures, Eefje has decided to persevere and spend her time doing what she loves: riding her beloved pony.

eBook

To commemorate the 10 year anniversary of Expression of Hope, we created a portable way to showcase the powerful Featured Artwork images from the three EOH campaigns in 2006, 2009, and 2015. The artwork conveys the stories and experiences of those affected by an LSD, representing the Fabry, Gaucher, Pompe, Niemann-Pick, and MPS and related disease communities. The digital formats of the book provide unique ways for you to access and share these stories offline with your family, friends, and loved ones.

The PDF version includes all Featured Artwork images and artist statements, while the ePub for iPad includes the artist videos contained within this website.

Use your chosen device to navigate to this page (http://expressionofhope.com/10-year-anniversary) and select the optimal version below.

PDF (14mb)

DOWNLOAD

Designed for all devices. The PDF features all artist imagery and statements, however it does not contain any videos.

ePub for iPad (194mb)

DOWNLOAD

Designed for iPad 3 or later, iPad Mini 3 or later, iPad Air or later, running iOS 8.0 or later. The ePub will function on iPhones, however usability will vary.

Download speeds vary and could take in excess of 10 minutes. Do not refresh or click the back button. The ePub file will appear when complete.

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