Meet the artists behind four of the Expression of Hope III Featured Artwork pieces. Learn about how their art has shaped their experiences of being affected by lysosomal storage disorders.
Matt Sheldon, The Colours of the Penguins
Matt created The Colours of the Penguins to convey his admiration of his young cousin who is affected by Niemann-Pick Type C. Matt shares what the support of family means for someone living with an LSD.
Charlotte & Rachel Matthews, Walking in Sunshine
Though Charlotte is affected by Fabry, she finds strength in her art. Her mother, Rachel, tells us how her daughter is able to look for sunshine and dance, even in the rain.
Frank Rodriguez, First Day at School
Photography has always helped Frank, who lives with Pompe disease, experience the world and share his journey of fatherhood. Now his photos feature the most beautiful subject of all, his young daughter Eva, as she begins her own personal journey.
Eefje, It’s There But You Don’t See It
Eefje and her mother Annelies both have Fabry disease. Despite the pain she often endures, Eefje has decided to persevere and spend her time doing what she loves: riding her beloved pony.
To commemorate the 10 year anniversary of Expression of Hope, we created a portable way to showcase the powerful Featured Artwork images from the three EOH campaigns in 2006, 2009, and 2015. The artwork conveys the stories and experiences of those affected by an LSD, representing the Fabry, Gaucher, Pompe, Niemann-Pick, and MPS and related disease communities. The digital formats of the book provide unique ways for you to access and share these stories offline with your family, friends, and loved ones.
The PDF version includes all Featured Artwork images and artist statements, while the ePub for iPad includes the artist videos contained within this website.
Use your chosen device to navigate to this page (http://expressionofhope.com/10-year-anniversary) and select the optimal version below.
Designed for all devices. The PDF features all artist imagery and statements, however it does not contain any videos.
ePub for iPad (194mb)DOWNLOAD
Designed for iPad 3 or later, iPad Mini 3 or later, iPad Air or later, running iOS 8.0 or later. The ePub will function on iPhones, however usability will vary.
Download speeds vary and could take in excess of 10 minutes. Do not refresh or click the back button. The ePub file will appear when complete.